Epilepsy Queensland

📑 Senate Inquiry - Next Steps

Now that all submissions for the Senate Inquiry into Epilepsy in Australia have been received and processed, you might be thinking, 'So... now what?' 🤔

This Friday, 26 June, a public hearing will take place at Parliament House, Canberra. While the official program has yet to be released, it will be available for the public to livestream. Make sure to keep checking our website and social media pages for the details - we'll publish them as soon as they become available.

Thank you to everyone who completed a survey, shared their story, or made a personal submission. Your lived experience brings vital insight to this process, helping decision-makers better understand the realities, challenges, and needs of people living with epilepsy and those who support them.

Submissions are available to view on the Parliament of Australia website, including ours which is submission #181: https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/EpilepsyinAustralia/Submissions

🎨🍪 Cookies & Canvas – FREE Family Event in Toowoomba! 🍪🎨

Join us for a fun-filled afternoon of creativity, connection, and community!

Whether you bring friends along or come solo and join a team on the day, everyone is welcome. Enjoy games, painting, snacks, laughter, and the chance to connect with others who understand the epilepsy journey.

What to expect:
🎨 Fun and inclusive art activities and expression games
🤝 A great opportunity to meet and connect with like-minded people
🍪 Delicious cookies, plenty of laughs, and good vibes
💜 A welcoming, family-friendly environment

📅 Tuesday 30 June
⏰ 1:00pm – 3:00pm
📍 Toowoomba (venue to be confirmed)

👨‍👩‍👧‍👦 Who can attend?
People of all ages living with epilepsy, along with their families and carers.

This is a FREE event, and we'd love to see you there! 💜

Register here: https://www.eventbrite.com.au/e/cookies-canvas-free-event-for-families-and-those-living-with-epilepsy-tickets-1988881828087

When Maddie got her diagnosis at 19 years old, she was left to figure everything out on her own.

“I'd had to do a lot of my own research ... I had to hunt around myself and, with that limited understanding, educate the people around me.”

Her family were left searching for answers too.

“When Maddie was diagnosed, my wife and I were sitting looking at each other, on a daily basis, thinking ‘what do we do?’,” said her dad, Craig.

That was until they found Epilepsy Queensland.

“It was almost like putting the puzzle pieces together,” Maddie said.

“To know that there’s someone there who really gets it – I don’t even have the words to describe the relief,” said Craig, "Suddenly we had somewhere to turn; it was like we'd been rescued."

Unfortunately, Maddie’s experience isn’t unique.

This tax time, you can help ensure more Queenslanders affected by epilepsy receive the support, information and understanding they deserve.

No donation is too small - all funds raised help provide our free support services to families just like Maddie's

💜 Make your contribution here: https://myimpact.epilepsyqueensland.com.au/tax-appeal-2026

🚨 LAST CHANCE TO JOIN THE WALLYS 🚨

State of Origin Game 3 is SOLD OUT... but we've still got a handful of tickets left in our section 😉 👑

Join hundreds of Queenslanders at Suncorp Stadium as we create a sea of Wallys, all dressed in our exclusive Wally Lewis-inspired jerseys and cheering on the Maroons together.

🏉 Official Game 3 ticket
👑 Exclusive Wally-inspired jersey
💜 Supporting the 50,000 Queenslanders living with epilepsy

This isn't just a ticket to Origin. It's your chance to be part of something unforgettable.

🎟️ Final tickets available now: https://events.humanitix.com/eqthewallys2026

No ticket? NO PROBLEM! 🎫💝

The Purple Supper Silent Auction is now LIVE — and you can be in with a chance to win, no matter where you are!

We've got more prizes than ever before, thanks to the generosity of our incredible supporters, with a range of items across experiences, travel, food, family fun, wellness, entertainment and so much more.

The best part? You don't need to be attending The Purple Supper to place a bid.

It's quick and easy to register, and every bid helps Epilepsy Queensland continue supporting people living with epilepsy and their families through vital services, education, advocacy and connection.

✨ Browse, bid and support a great cause: https://event.gives/ps2026/items

Because behind every item is an opportunity to create a real impact 💜

We're continually inspired by the incredible people in our community who find creative ways to support the work we do.

Events like the upcoming O'BrienCo Race Day are a wonderful example of how businesses, community groups and individuals can come together, have fun, and make a meaningful difference for people living with epilepsy and their families.

Every fundraiser, workplace event, community gathering or special occasion hosted in support of Epilepsy Queensland helps create greater awareness, connection and impact. We're so grateful to those who choose to champion our cause and bring others along on the journey.

This event in particular honours a very special individual, Lauren 'Loz' Smith, who tragically lost her life to SUDEP. Her legacy lives on through her family, friends and wider community and is a reminder to us all about the impact we can make when we we honour those we love through action, connection and community.

Thank you to O'BrienCo and everyone who continues to find ways to support the 50,000 Queenslanders impacted by epilepsy💜

If you'd like to learn more about the O'BrienCo Race Day or attend on the day, you can find all the details here: https://events.humanitix.com/clifford-park-race-day

Game 3 is sold out… but the King’s section is calling 👑

This is your chance to join hundreds of Queenslanders as ‘The Wallys’ at Suncorp Stadium!

We’ll kit you out in a maroon jersey, bald cap and moustache kit as you cheer on the Maroons.

Every ticket helps support Epilepsy Queensland and the 50,000 Queenslanders living with epilepsy 💜

What are you waiting for? Be the KING at State of Origin Game 3 🏈

Get your tickets here: https://events.humanitix.com/eqthewallys2026

Epilepsy is often misunderstood as “just seizures”.

But for people like Maddie, it means fear, rejection, isolation and loss of independence.

It’s planning every day around the risk of something you can’t actually control.

We’re sharing Maddie’s story to show what epilepsy really looks like, and the difference a little help can make.

Read Maddie's story here: https://bit.ly/EQ_TA26