Sickle Cell Society UK

Voices of Resilience - Join communities from around the world as we amplify the voices of those living with sickle cell and champion a future of hope, equity and compassionate care.

Together, we can raise awareness, inspire change and save lives through education, advocacy, empowerment and research.

📅 19 June 2026
⏰ 10am–5pm
📍 Camden Town Hall, London

❤️ Wear red. Share your story. Support sickle cell awareness.

"Delighted to be presenting at this year's FSCDR conference and sharing ideas, developments and important conversations shaping the future of sickle cell care and advocacy.

It was a pleasure to connect with inspiring colleagues, including Cassandra Trimmell from Sickle Cell 101, and learn from the incredible work taking place across the global sickle cell community." – John James, CEO, Sickle Cell Society

REMINDER! 🎨 Creative Saturdays for the Sickle Cell Community

Free art workshops • Free lunch • Free to join ❤️

Friends and family welcome!

Painting, sculpture, zine making & more!

📍 Bay20 Community Centre, Ladbroke Grove
🕐 Saturdays, 1–5 PM
📅 13 Jun – 25 Jul | Final showcase 01 Aug

👉 Limited tickets book via Eventbrite!
https://buff.ly/JvhD6jn

🎨 Creative Art Workshop: All About Me

Join us for the first session in our Sickle Cell Hope Creative Art Workshop Series.

This collaborative zine-making workshop is an opportunity to explore and celebrate your story through creativity. Together, we'll create a unique piece reflecting our lives, interests, achievements, hopes and experiences.

📅 Saturday 13 June 2026
⏰ 1pm–5pm
📍 Bay20 Community Centre, 71 St Marks Road, Ladbroke Grove, W10 6JG

✨ Free to attend
🍽️ Free refreshments provided
🎟️ Reserve your free place today:
https://buff.ly/JvhD6jn

We can't wait to create, connect and celebrate with you.

🧺🌞 Join us for the South East London Sickle Cell Community Picnic!

A free day out for people living with sickle cell, their families and the wider community. Come together to celebrate the strength, unity and resilience of South East London’s sickle cell community.

📅 Saturday 20 June 2026
⏰ 11am–3pm
📍 Crystal Palace Park Cricket Pitch

Enjoy free food and refreshments, games and activities for all ages, peer support, advice from NHS clinicians, and information about local services and support.

Register via the QR code or visit: bit.ly/sickle-cell-picnic

We look forward to seeing you there! 💛

Today, we're proud to launch our World Sickle Cell Day 2026 theme: Young Voices Rising.

Across the UK, young people living with sickle cell are speaking up, challenging stigma, sharing their experiences and taking charge of their health and futures.

This year, we're shining a spotlight on their voices, their achievements and their potential.

Throughout the campaign, we'll be celebrating young leaders, sharing practical resources, amplifying lived experience and encouraging young people affected by sickle cell to own their health, ask questions and live well.

Join us as we count down to World Sickle Cell Day on 19 June. Visit our website for more information and to access resources.

🎨 Creative Saturdays for the Sickle Cell Community
Free art workshops • Free lunch • Free to join ❤️

• Friends and family welcome
• Ages 15+
• Painting, sculpture, zine making & more

📍 Bay20 Community Centre, Ladbroke Grove
🕐 Saturdays, 1–5 PM
📅 13 Jun – 25 Jul | Final showcase 01 Aug

👉 Limited tickets book via Eventbrite using the link or scan the QR code
https://www.eventbrite.co.uk/e/make-share-create-sickle-cell-art-workshops-tickets-1987817688216

📣 Call for participants: Sickle Cell & Learning Disabilities Research

Are you someone living with both sickle cell and learning disabilities, or do you support a family member with these experiences? Researchers are looking to connect with individuals, carers and healthcare professionals to help shape a future PhD project focused on improving healthcare experiences and outcomes.

Currently, there is very limited data on people living with both conditions, making lived experience and community voices essential in helping guide future research and care improvements.

This work is being developed by a learning disability nurse with lived experience of sickle cell, with the aim of ensuring better support and reducing adverse outcomes.

📲 Scan the QR code on the flyer or get in touch directly to share your experiences and interest. Contact details can be found on the flyer.

📣 We’re proud to share that our CEO, John James, will be speaking at the 49th National Sickle Cell Disease Scientific Meeting & 20th Anniversary Research and Educational Symposium.

Hosted by the Foundation for Sickle Cell Disease Research, this global event brings together researchers, clinicians, advocates and people with lived experience to advance conversations around sickle cell care, research and the future of treatment.

We look forward to seeing the Sickle Cell Society represented and contributing to important discussions shaping the future of sickle cell.

📅 5–7 June 2026
📍 Fort Lauderdale, Florida & online (hybrid event)

🔗 Find out more and register: https://buff.ly/NWqcboD

📢 We’re hiring: Fundraising Database Officer

We’re looking for a detail-oriented individual to support the management and development of our fundraising database — helping strengthen supporter engagement and maximise fundraising impact.

If you have strong organisational skills and experience working with databases, this could be a great opportunity to join the Sickle Cell Society and make a difference behind the scenes.

📅 Closing date: 7 June 2026

🔗 Find out more and apply:
https://www.sicklecellsociety.org/fundraising-database-officer/