結節性硬化症家長及Everolimus 安妥Afinitor 交流
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這專頁有關結節性硬化症病人和家屬及照顧者互相交流平台 https://youtu.be/QTyEcCyz9l4
https://youtu.be/wfiKo34eGbI
2014 年TVB 東張西望訪問「結節性硬化症」患者家長
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