Cystic Fibrosis Foundation - Central Texas Chapter

Research funded by the National Institutes of Health (NIH) has driven decades of progress in cystic fibrosis. It led to the discovery of the CFTR gene and deepened our understanding of the disease, laying the foundation for today’s treatments and future therapies in development. Despite this progress, significant unmet needs remain. There is still no cure, and many people with CF cannot benefit from existing therapies.

Today, teens from across the country are advocating on Capitol Hill and online for the Foundation’s 18th annual Teen Advocacy Day. They are sharing their personal stories and asking members of Congress to increase funding for the NIH to sustain a robust research pipeline, support innovation, and accelerate progress toward treatments for every person with CF and, ultimately, a cure.
https://act.cff.org/campaign/increasefundingNIH/

Calling all undergraduate, graduate, and medical students!

The CF Foundation College Program presented by Tomorrow's Leaders brings together students from across the country Aug. 3-7 for a free, virtual experience focused on leadership, professional development, and the cystic fibrosis community.

Participants will explore topics like data-driven storytelling, generative AI, and how science, policy, and advocacy work together to help those with CF — all while connecting with researchers, community members, and leaders in the cystic fibrosis space.

We’re incredibly proud of Ivy Tully and Willow and C**t Aja for representing the cystic fibrosis community at the Cystic Fibrosis Foundation's 18th annual Teen Advocacy Day.

Ivy recently graduated from Lake Travis High School here in Austin. This is her 4th year doing TAD on behalf of her two nieces Frankie and Cora Tully.

Willow and C**t will be participating virtually. They are brother and sister, who both have CF. They have participated for multiple years in TAD and are looking forward to another great year advocating for the CF community.

They will be sharing their stories with John Cornyn, Senator Ted Cruz, Michael McCaul and others to highlight the urgent need to increase funding for the National Institutes of Health to sustain a robust research pipeline, support innovation, and accelerate progress toward treatments for every person with CF — and ultimately, a cure.

Key to the Cure Austin is almost here — and we can’t wait to celebrate with you. ❤️

Mark your calendar for an unforgettable evening benefiting the mission to find a cure for cystic fibrosis.

📍 Brazos Hall, Austin
📅 Friday, November 20, 2026

Join us for an incredible night featuring award-winning chef Tim Love, live entertainment, inspiring stories, and a community united for a life-changing cause.

Tickets and sponsorship opportunities are available: https://events.cff.org/keytothecure

Join the next CF Circle for a virtual, small-group discussion about the Black CF Experience. On June 23 at 7 p.m. ET, Black adults with CF, as well as parents and caregivers of Black children with CF, are invited to talk openly with peers about shared experiences like misdiagnosis, delays in treatment, self-advocacy in medical settings, and navigating life with CF.

This 65 Roses Day (6/5), join the 65 Roses Club: a dedicated group of monthly donors committed to helping cure cystic fibrosis.


As a monthly donor, you can spread your support into smaller gifts that add up to real progress. This steady, reliable stream of revenue helps enable the Foundation to fund innovative research, drug development, and provide high-quality, specialized care so that we can get closer to a cure for cystic fibrosis.


Joining is easy — set up automatic monthly giving through the donation page and know your support is working for people with CF every month, without any extra steps.

65 Roses Day (6/5) is around the corner! Are you familiar with the “65 Roses” story?

The “65 Roses” story began in 1965 when a 4-year-old, hearing the name of his disease for the first time, pronounced cystic fibrosis as “65 Roses.” Today, it’s a term many children with CF still use to describe their disease. But making the disease easier to say doesn’t make it easier to live with.

Key to the Cure Austin is Back! Mark your calendar for an unforgettable night as we come together to celebrate, give back, and help find a cure for cystic fibrosis.

📍 Brazos Hall, Austin
📅 Friday, November 20, 2026

Enjoy an incredible evening featuring award-winning chef Tim Love, live entertainment, and powerful stories that remind us why this mission matters.

Stay tuned for ticket details https://events.cff.org/keytothecure